Aboriginal Patient Reported Outcome Measures – What are rural and remote perspectives? (post no. 12)

Aboriginal PROMS Evaluation

In post no. 11, I got a bit more detailed about Country and PROMS, and asked: So, how do we get the philosophy of cultural connection to Country grounded in survey design? In this post, I’ll talk about evaluation of the trails.

There are three trials sites right now – two in regional areas and one in a metropolitan location. And don’t forget, you can register for our next Community of Interest workshop and find out a lot more about the trials. The date is Friday 20th August, 2021 (11-12:30), and email ACI-PRM@health.nsw.gov.au to register.

We are using the Better Evaluation Rainbow Framework

The ACI are developing an Evaluation Reference Group and Terms of Reference – let us know if you want to be involved. Or should I say, who doesn’t want to be involved?!

We’ve yarned about what kinds of evaluation to do. I’ve advocated for a ‘realist evaluation’ – as in, “is this for real?!” or “that’s unreal, cuz” or “will you get real already!”. No, really, realist evaluation is about understanding what works, in what circumstances, and who for.

Rainbow Evaluation Framework

‘A more culturally appropriate visual model for participants and the facilitator was developed. It depicted the facilitator, group, mum, child, and the mum and child’s interface with education, community, and health services along with hypothesised shorter, intermediate and longer-term outcomes (see the feature image).’ Cool, so let’s get something going for the evaluation of the Aboriginal PROMs trial and evaluation.

Step 1 – Manage and evaluation or evaluation system: Easy peasy lemon squeezy. There are nine sub-steps to this process. Hang on, I said sub-steps, but should the hyphen be removed? That is, ‘substep’, it’s an editing debate. I came across this word ‘subarea’ and I had to double take because I thought it could mean ‘suburban area’! But no, it means ‘sub-area’, so I disagree with taking out the hyphen on some words.

I digress, for the nine sub-steps we have to consider Aboriginal patients (115,106 hospitalised in 2018-2019), there are 16 registered health professions (AHPRA), the Coalition of Peak Aboriginal Organisations, the members of the Aboriginal Health and Medical Research Council, the NSW Ministry of Health Local Health districts, the Commonwealth Primary Health Networks, and the 53 First Nations of NSW!

And that’s just the start. Let us know if we’ve missed anything please. And feel free to share your evaluation experiences with us😎

Feel free to let the ACI know your cultural perspectives. Email ACI-PRM@health.nsw.gov.au to get in-touch with the PRMs Aboriginal Health Working Group: Email subject – PRMs Aboriginal Health Working Group:

  1. Email subject – PRMs Aboriginal Health Working Group Community of Interest meetings (this allows for opportunities to hear the voices of Aboriginal consumers and stakeholders in the development of the NSW Patient Reported Outcome Measures (PROMs) Program)

2. Email subject – Aboriginal PROM Trial and Evaluation group participation.

3. You can also subscribe to general PRMs newsletter and community of interest here: https://aci.health.nsw.gov.au/statewide-programs/prms/connect

In the next post, I’ll talk Mr Sharif Bagnulo – Knowledge Mobilisation Manager for the NSW Rural Doctors Network . Mark Lock😉

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I apply my academic and cultural skills to editing your important writing. With a Doctor of Philosophy (Public Health), Master of Public Health, Honours in Nutrition, and a Bachelor of Science, I bring strong educational skills to my editing. As a First Nations Australia (Ngiyampaa), with First Fleet heritage (The Lucas Clan) and growing up in country NSW, I bring a unique cultural lens to my practice. My editing will empower your cultural safety - respecting your cultural identity, heritage, and values - so that your cultural voice shines through in your writing. If you need editing of your creative writing, academic writing, or report writing, then contact Cultural Safety Editing Service.

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